Message from the President and CEO
Diana Gray, MA
President and Chief Executive Officer
Hydrocephalus Association
"2025 was a landmark year for the Hydrocephalus Association. From a historic breakthrough in iNPH research to record investments in innovation and expanded support for families, we demonstrated the extraordinary impact that is possible when a passionate community unites around a shared mission. Together, we are advancing discovery, improving lives, and creating hope for everyone affected by hydrocephalus. And we’re not done – we have set the stage for tremendous gains in 2026 and beyond." — Stephanie Vogt, Chair of HA Board of Directors
In 2025, the Hydrocephalus Association continued to expand opportunities for individuals, families, and supporters to make a meaningful impact. From endurance events and grassroots fundraising to legacy giving and innovative tools that support daily life with hydrocephalus, these highlights showcase the many ways our community is advancing HA's mission and helping build a stronger future for all those affected by hydrocephalus.
Resource Spotlight: HydroAssist®
Since launching our Research Initiative in 2009, we have invested $16.9 million directly into innovative studies and collaborative networks. This investment has helped HA researchers secure an additional $94 million in competitive grants from the NIH, the Department of Defense, and other foundations—bringing the total hydrocephalus research investment to $111 million. These funds continue to fuel groundbreaking discoveries and accelerate the search for better treatments and, ultimately, a cure.
HA Publishes Key Research Priorities for Non-Invasive Therapies to Improve Hydrocephalus Outcomes
People Have completed baseline survey for HAPPIER, Our Hydrocephalus Patient Registry
All-Time Grants Awarded
Compounds/Drugs Tested
Patents for Drug/Compound Approved
Invested in Research since 2009
Secured in Additional Funding by HA Researchers
Total Hydrocephalus Research Investment
Improving lives is at the heart of everything we do. Every family’s hydrocephalus journey is unique, but no one should navigate it alone. In 2025, we continued our commitment to helping people with hydrocephalus and their families thrive by providing trusted information, fostering meaningful connections, and creating programs that offer support, comfort, and hope.
Support Touches
Community Network Meetings
HA Community Networks
Education Days HELD
HA VIRTUAL GROUPS
Medical professionals
in HA's Physicians Directory
5 Webinars Held
Elevating the voices of the hydrocephalus community is essential to building awareness, advancing advocacy, and driving change. In 2025, we brought people together locally and globally to share stories, educate others, and amplify the realities of living with hydrocephalus.
We continue to serve as the leading voice for the hydrocephalus community on Capitol Hill, championing increased research funding and representing the real needs of those living with the condition. Our advocacy ensures hydrocephalus remains a priority for policymakers and federal agencies.
In 2025, the WALK to End Hydrocephalus brought together more than 7,200 participants across 43 events nationwide, raising more than $1.84 million to advance research, education, advocacy, and support programs while continuing to raise awareness, strengthen community, and drive progress toward better treatments and, ultimately, a cure.
Looking Ahead
Held across the US
helped raise money at a walk
participated in a HA Walk
Raised for Hydrocephalus research, support & education
We deeply appreciate the commitment of our Corporate Council partners, whose generous support helps us expand our mission programs and reach more people affected by hydrocephalus.
FINANCIALS
In 2025, 84% of the Hydrocephalus Association's total expenses were used to support our mission of finding a cure and improving the lives of those impacted by hydrocephalus.
MISSION EXPENSES
EXPENSES
Statement of Activities
TOTAL SUPPORT & REVENUE
$4,335,462
EXPENSES
CHANGE IN NET ASSETS
The Hydrocephalus Association has earned high marks from the GUIDESTAR, CHARITY NAVIGATOR, AMERICA’S BEST CHARITIES and the NATIONAL HEALTH COUNCIL. See all of our Charity Ratings. For more on our financials, visit our website.