ELEVATING OUR VOICES
Hydrocephalus Awareness Month and World Hydrocephalus Day 2025
Each September, the Hydrocephalus Association leads a national campaign powered by our community to raise awareness, educate the public, and advocate for greater research and support. In 2025, we organized the third World Hydrocephalus Day, uniting partners around the world. These two cornerstone initiatives elevate the voices of those living with this complex neurological condition.
Hydrocephalus Awareness Month 2025
Do You Know Hydrocephalus? I mean, Really Really Know It.
Hydrocephalus Awareness Month 2025 brought together education, storytelling, and community engagement to expand understanding of hydrocephalus and amplify the voices of those impacted by the condition.
Throughout September, the Hydrocephalus Association launched a dynamic awareness campaign designed to educate the public, encourage conversation, and deepen understanding of life with hydrocephalus.
The campaign featured weekly themed content, community stories, and four interactive online quizzes that engaged nearly 3,200 participants and generated more than 4,700 responses. The quizzes became one of the campaign’s most impactful educational tools, revealing both strong awareness and opportunities for continued education. Participants demonstrated a growing understanding of invisible symptoms, mental health challenges, and barriers to care, while also highlighting the need for greater awareness around adult hydrocephalus and ongoing research efforts.
Every story shared, conversation started, and voice amplified during Hydrocephalus Awareness Month helped advance understanding, reduce stigma, and strengthen support for the hydrocephalus community.
World Hydrocephalus Day 2025
Sparking Global Unity to Enact Change
September 20, 2025, brought together patients, caregivers, healthcare professionals, and advocacy organizations around the world to raise awareness of hydrocephalus and the urgent need for greater understanding, diagnosis, and access to care.
Now in its third year, the global campaign continued to expand its international reach through collaboration, education, and community engagement. Organizations and medical professionals from countries including Greece, Ethiopia, Thailand, Argentina, and Canada joined together to amplify awareness efforts and share the realities of living with hydrocephalus across diverse communities and healthcare systems.
Supported by partnerships with 17 international organizations, World Hydrocephalus Day continued to strengthen global visibility for hydrocephalus while fostering connection, advocacy, and hope within the worldwide hydrocephalus community.
